A Guide for Breast Cancer Caregivers

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Overview

A caregiver is usually a close relative of a cancer patient who gives them physical assistance and emotional support throughout treatment. Caregivers have many responsibilities and are a key member of the healthcare team. It is important for caregivers to establish good relationships with the rest of the team in order to provide the best and most efficient care for the patient. Here are some helpful tips for communicating with doctors:

Husband and Wife
  • Ask the doctor to be open, forthright, and practical.
  • Write questions down so you won't forget them.
  • Be clear and concise. Try not to ramble to the doctor.
  • Make a consultation appointment for the doctor to answer all your questions.
  • Educate yourself about your loved one's disease.
  • Know the role of each member of the treatment team.
  • Thank the doctors for their help from time to time.

Caregiver Burnout

Caring for someone with breast cancer is a huge responsibility that can sometimes feel like a full-time job. Many caregivers want to be there for their loved ones 24 hours a day, but must also attend to their usual responsibilities. You may feel like you don’t have the time or energy to deal with all your duties. Caregivers who ignore their own needs can end up burned out, sick, and depressed themselves. Here are some symptoms of caregiver burnout:

Irritability, losing patience easily
Irritability, losing patience easily
Fatigue, exhaustion
Fatigue, exhaustion
Insomnia, difficulty sleeping
Insomnia, difficulty sleeping
Appetite changes
Appetite changes (you eat a lot more or a lot less than normal)
Increased substance use
Increased substance use (alcohol, drugs, or smoking)
Feelings of guilt or resentment
Feelings of guilt or resentment
Feeling overwhelmed
Feeling overwhelmed, unable to balance role with other responsibilities.
Depression
Depression
Trouble thinking clearly, difficulty making decisions
Trouble thinking clearly, difficulty making decisions
Headaches
Headaches
Stomach problems, or feeling unwell
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Stomach problems, or feeling unwell

Caring for Yourself

Caring for someone you love should be a very rewarding experience. Here are some tips to take care of your physical and emotional health and avoid burnout.

Caring for Yourself
  • Get plenty of exercise.
  • Eat a nutritious diet.
  • Get enough sleep.
  • Keep up with your own doctor’s appointments and medications.
  • Practice meditation or yoga.
  • Make time for your favorite activities and hobbies.
  • Join a support group.
  • Talk to a family member. Ask for help.
  • Pray, meditate or read religious material.
  • Take a break.
  • Keep a journal.
  • Consider getting professional help.

Useful Information & Important Documents

Here are some important pieces of information to have on hand when caring for a loved one:

Important documents
  • Social security and medicare numbers
  • Insurance information
  • Bank accounts, account numbers, credit card information, etc.
  • Current will
  • Durable power of attorney, living will, or other advanced directive